Metastatic breast cancer support groups


There are many organizations that provide opportunities to connect in person or online for support. We've put together a list of support groups that can help you connect with other women who have metastatic breast cancer (MBC) and share your experiences.


This information has been provided by the listed organizations, and Lilly is not responsible for the content. Its use on this site is not intended to serve as an endorsement of the listed organizations.

All third party organization names and other trademarks are the property of their respective trademark owners. Those trademark owners are not affiliated with Lilly and they do not sponsor or endorse this material.

Metastatic Breast Cancer Network

Metastatic Breast Cancer Network (MBCN) is a national, independent non-profit, all-volunteer, patient-led advocacy organization dedicated to the unique concerns of women and men living with metastatic breast cancer, also known as stage IV or advanced breast cancer.

Metavivor: Metastatic Breast Cancer Research, Support and Awareness

METAvivor is a volunteer-led, non-profit organization that funds vital research to help improve the longevity and quality of life for metastatic breast cancer patients like you. Our mission is to transition metastatic breast cancer from a terminal diagnosis to a chronic, manageable disease with a decent quality of life.

Living Beyond Breast Cancer

Living Beyond Breast Cancer (LBBC) is a non-profit organization that provides programs and services to support you. Our goal is to provide information, community, and support that you can trust, is easy to access, and respectful of you and your situation. All our resources are carefully and frequently reviewed by some of the country’s leading health experts and informed people living with breast cancer.

BreastCancer.org

Breastcancer.org is a patient-centric resource for breast cancer information and support. It engages, educates, and empowers women and men with expert information and a dynamic peer support community, so that they may make the best decisions for their lives.

MBCalliance

MBC Alliance The vision of the MBC Alliance is to transform and improve the lives of people living with metastatic breast cancer. The MBC Alliance was formed by leading breast cancer advocacy groups, individual advocates, and pharmaceutical industry partners.

Young Survival Coalition

Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections, and outreach so women feel supported, empowered, and hopeful.

Susan G. Komen

Susan G. Komen is the world's largest breast cancer organization, funding more breast cancer research than any other nonprofit outside of the federal government while providing real-time help to those facing the disease.

Verzenio Continuous Care can help connect you with advocacy groups and provide the support you need

Purpose and Safety Summary
Important Facts About Verzenio® (ver-ZEN-ee-oh). It is also known as abemaciclib.

Verzenio is a prescription medicine used to treat a type of breast cancer. It is a medicine you can take if:

  • You have a type of breast cancer called HR+/HER2– (hormone receptor positive/human epidermal growth factor receptor 2–negative) and the cancer has spread to other parts of the body (metastasized)
  • Verzenio is given along with an aromatase inhibitor as initial endocrine-based therapy for the treatment of postmenopausal women, along with fulvestrant in women whose disease has progressed after hormonal therapy, or by itself in adults whose disease has progressed after hormone therapy and prior chemotherapy

It is not known if Verzenio is safe and effective in children.

Warnings

Verzenio may cause serious side effects, including:

Diarrhea is common with Verzenio, may be severe and may cause dehydration or infection. The most common time to develop diarrhea is during the first month of Verzenio treatment. Your doctor may stop your treatment, lower your dose, or tell you to wait to begin your treatment cycle if you have diarrhea.

At the first sign of loose stools, tell your doctor. You may be advised to start taking an antidiarrheal medicine (such as loperamide) and drink more fluids.

Low white blood cell counts (neutropenia) are common with Verzenio and may cause serious infections that can lead to death. Your doctor should check your white blood cell counts before and during treatment. Tell your doctor right away if you have fever or chills.

Verzenio may cause severe or life-threatening inflammation (swelling) of the lungs during treatment that can lead to death. Tell your healthcare provider right away if you have any new or worsening symptoms, including:

  • trouble breathing or shortness of breath
  • cough with or without mucus
  • chest pain

Verzenio can cause liver problems. Tell your doctor right away if you have any of the following signs or symptoms of liver problems:

  • Feeling very tired
  • Loss of appetite
  • Pain on the upper right side of your stomach area (abdomen)
  • Bleeding or bruising more easily than normal

Verzenio may cause blood clots in your veins or lungs. These may be serious and have led to death. Tell your doctor if you have the following signs and symptoms of a blood clot:

  • Pain or swelling in your arms or legs
  • Fast breathing
  • Shortness of breath
  • Fast heart rate
  • Chest pain

Verzenio can harm your unborn baby. Use effective birth control during treatment and for at least 3 weeks after the last dose of Verzenio and do not breastfeed during treatment with Verzenio and for at least 3 weeks after your last dose. Verzenio may affect the ability of males to father a child.

Common side effects

The most common side effects of Verzenio include:

  • Nausea
  • Abdominal pain
  • Infections
  • Tiredness
  • Low red blood cell counts (anemia)
  • Low white blood cell counts (leukopenia)
  • Decreased appetite
  • Vomiting
  • Headache
  • Low platelet counts (thrombocytopenia)
  • Hair thinning or hair loss (alopecia)

These are not all the possible side effects of Verzenio.

Tell your doctor if you have any side effects. You can report side effects at 1-800-FDA-1088 or www.fda.gov/medwatch.

Before using

Before you use Verzenio, tell your doctor:

  • If you have fever, chills, or other signs of infection
  • Have liver or kidney problems
  • About all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Especially tell your doctor if you take a medicine that contains ketoconazole. Avoid grapefruit products while taking Verzenio. Grapefruit may increase the amount of Verzenio in your blood
How to take
  • Use Verzenio exactly as your doctor tells you
  • Take your doses of Verzenio at about the same time every day
  • If you vomit or miss a dose take your next dose at your regular time. Do not take 2 doses of Verzenio at the same time to make up for the missed dose
  • If you take too much Verzenio, call your doctor or go to the nearest hospital emergency room right away
Learn more

For more information, call 1-800-545-5979.

This summary provides basic information about Verzenio but does not include all information known about this medicine. Read the information that comes with your prescription each time your prescription is filled. This information does not take the place of talking with your doctor. Be sure to talk to your doctor or other healthcare provider about Verzenio and how to take it. Your doctor is the best person to help you decide if Verzenio is right for you.

Verzenio® is a registered trademark owned or licensed by Eli Lilly and Company, its subsidiaries or affiliates.

AL CON BS 20SEP2019